Fighting for children’s rights in the high-tech fertility age

In a time when the fertility business in the U.S. is booming and so much is possible — artificial insemination, in vitro fertilization (IVF), surrogacy, and potentially, bioengineering of embryos — there are few, if any, laws that protect the children from these less traditional origins.

quadruplet babies

Babies of Technology: Assisted Reproduction and the Rights of the Child, by Mary Ann Mason, was published in April 2017.

But there should be, says Mary Ann Mason, a professor of the graduate school at UC Berkeley and a faculty affiliate of the Berkeley Center for Law and Technology. She advocates for strict regulation of the multibillion-dollar fertility industry in her new book Babies of Technology: Assisted Reproduction and the Rights of the Child.

Berkeley News spoke with Mason about the state of assisted reproduction in the U.S. and how it needs to change.

What rights do you believe children born through assisted reproduction should have?

Mary Ann Mason: All children have a right to know who their biological parents are and the culture they come from. We are our genes. There is a great need to know where you come from. It’s considered a human right in the U.S. and a children’s right in the U.N. In 1989, there was a U.N. conference on the rights of a child. All the countries came to the conference, including the U.S., and we signed the treaties. But we’re the only country that didn’t ratify it because we didn’t believe in children’s rights.

Mary Ann Mason

Mary Ann Mason is a professor of the graduate school and a faculty affiliate of the Berkeley Center for Law and Technology.

What are some of the hardships that these kids face?

Right now in the U.S., sperm donors are promised anonymity. They can give hundreds of donations, so they could have a lot of kids out there who don’t know who their biological father is. Also, when children do know who the sperm donors are, perhaps because it was a friend or family member, other problems might arise. There was a U.S. Supreme Court case where a Florida man who had testicular cancer froze his sperm and his wife had a set of twins with his sperm after he died. The children born after he had died weren’t considered to be survivors, so they didn’t qualify to receive Social Security benefits.

If you have too many embryos implanted, the chances are high of having multiple children with a low birth weight. The mortality and disability associated with low birth weight are prevalent in IVF. In Europe, they limit the number of implantations. Europe is better regulated on all fronts.

Then, we have the prospect of the gene-edited baby. It’s not all bad. It means you can edit out terrible diseases. But it does change the human species when you gene edit. And I think the temptation will be once you get rid of bad diseases, you can change height, intelligence, looks, all kinds of things.

Why is California considered a prime destination for fertility tourism?

California has laws that greatly favor the intentional parents — the people who sign the contract. The surrogate mom doesn’t have many rights. States have different laws. People from across the world, especially Asia, will find a surrogate in California, so their baby is born in the state and a California citizen. It’s a great advantage to them.

IVF

The first baby born using IVF was Louise Brown in 1978. (Photo by Maurizio De Angelis via Flickr)

What do you propose?

The U.S. should create a federal administrative agency that would control all aspects of reproduction, instituting guidelines and maintaining records of all procedures performed across the country. Sperm and egg donors shouldn’t be promised anonymity, and the donors shouldn’t be paid. They already have it in England.

What is your ultimate stance on assisted reproduction in the fast-moving technological age?

We’re not going to get rid of assisted reproduction. We just need strict rules. We’ve already had one child born using the DNA from three parents. The door is open. It’s not bad. It just has to be controlled with regulations that are pro-child. The constitution says a citizen is a person born here. Those are the people we really want to protect. We, as a country, need to take children’s rights seriously.

For nearly three decades, Mason has brought her expertise on children’s rights, child custody issues and family law and policy to UC Berkeley, first as a professor in the Graduate School of Social Welfare and currently as a faculty affiliate of the Berkeley Center for Law & Technology. From 2000 to 2007, she served as the first woman dean of the Graduate Division.

Read more about Mason’s new book Babies of Technology: Assisted Reproduction and the Rights of the Child on the Berkeley Law website.